Having conversations about advance care planning (ACP) is incredibly important for individuals navigating life with dementia or other memory disorders. These discussions give you the opportunity to express your preferences and values regarding your future healthcare decisions, ensuring that your care reflects your wishes. To make this process smoother, consider asking these essential questions when discussing ACP with someone who has been diagnosed with dementia.

Sample ACP conversation starters

1. Treatment preferences: What are your preferences regarding medical treatments and interventions as your dementia progresses? Do you have specific goals or outcomes in mind for your healthcare as your dementia progresses? Are there particular treatments or interventions that you would prefer or wish to avoid?

2. Quality of life: What activities, experiences, or relationships are important to you, and how can we ensure they are maintained for your quality of life? What activities or aspects of your daily life bring you the most joy and comfort that you would want to maintain?

3. Care settings: Have you thought about where you would prefer to receive care as your dementia advances, such as at home, in a specialized facility, or with family members? What role do you want your loved ones to play in your care, and how can they best support you?

4. End-of-life care: What are your wishes concerning end-of-life care, including decisions about life-sustaining treatments, palliative care, and hospice care?

5. Communication preferences: How would you like to communicate your needs and preferences as your ability to express them changes over time?

6. Decision-making support: Who would you like to involve in healthcare decisions on your behalf if you are no longer able to make them yourself? How do you envision receiving care and support as your memory condition advances?

7. Personal beliefs and values: Are there specific cultural, spiritual, or personal beliefs that should guide your care and treatment choices? In what ways can your care team ensure that your dignity and autonomy are preserved throughout your healthcare journey?

Thinking about these questions can help you articulate your preferences, values, and priorities concerning your healthcare and quality of life. By expressing these thoughts and desires, you can ensure that your care plan aligns with your wishes and provides you with the support that is personalized and meaningful to you.